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From Pam- He just wants to be a real boy
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Mary Ann
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Joined: 18 Aug 2005
Posts: 6405
Location: Norwood, MA

PostPosted: Sat Sep 27, 2008 8:19 pm    Post subject: From Pam- He just wants to be a real boy Reply with quote

Dear Friends,
á
I want to share a story with you about a very special youngster, his name is Rayce Cannon and he is my great nephew. Rayce lives in Richland, Wa but has spent the majority of his life in andá out ofá Children's Hospital in Seattle. Rayce is going to undergo another serious operation soon, he has already had a liver stent put in to help his liver function normally. Rayce must have blood transfusions every two weeks and he will be beginning dialysis soon..á There is a perfect match found for his bone marrow from a frozen embryo from a baby'sáumbilical cord. After his bone marrow surgery Rayce will be in total isolation for 100 days at the Children's Hospital and then he and his Mom Dara will have to live in Seattle in an apt. for a year or more so Rayce can be near the hospital to check on the bone marrow. Rayce will have to be home schooled throughout this process as very few people will be allowed around him. Bill will have to come on weekends as the hospital is about six hours from their home. Once Rayce has healed completely from all of this then he will have to undergo open heart surgery. So it is a long hall for Racyeáandáhis family, your thoughts and prayers are much needed for all of them, andáno donation is to small everything will help them with the high costs they are facing for several years down the road. Please keep them all in your prayers. I know there are a lot of sick children and we all know somebody in need of assistance so if you can donate only once or if you can donate along the way it is most appreciated. If you cannot donateá your thoughts, prayersá& emails are most welcome.
á
Please add Rayce to your church prayer lists and pass along this information to anyone who might be interested in his life.
á
I have a blog on myspace and so does my niece Amber who is Rayce's aunt, I am Rayce's great aunt. We can keep you all updated on Rayce and his medical journey. Both of our blogs are on private profiles but if you are on our friend's list there you can read the blogs.
á
Rayce has been diagnosed with Red Cell Aplasia or Bone Marrow Failure.á
He also may have a form of what is called Dyskeratosis Congenita. Thisá
is a very rare disorder that is just now becoming more known becauseá
of new testing. Besides these diagnosis, Rayce also has a hole in hisá
heart, bad pulmonary function, a clot in his portal vein, minimalá
enamel on his teeth, and problems stabilizing his blood sugar.
á


He recently got a cast removed from a broken leg, and when asked whatá
he wanted to be for Halloween he said, "Rayce Cannon! I just want toá
be a little boy!"

Rayce is continually strong, and as his doctors say, "he does thingsá
the RAYCE CANNON way!"
á
áIf you would like to read more aboutá one of the conditions Rayce has please click on the link below.

http://www.emedicine.com/derm/topic111.htm

á
To send donations/funds to help pay for Rayce's medical costs and needs.
á
Address to send tax deductible donations for Rayce
á
Checks or money orders to be made out to Rayce Cannon oráTerry Cannon (grandfather)áeither way is acceptable.

Rayce Cannon Benefit Account
áAttention:: Terry Carver
áC/O Banner Bank
502 West Yakima Ave
Yakima, WA.
á90802

á
If you wish to email The Cannon family with your thoughts and prayers for them. Please email them at:

bill143dara@verizon.net
á
Rayce is a very active child and loves to play with toy trucks and motorcycles. He loves books and loves dinosaurs too.á His main love is motorcycles.
á
áHe is going to be four years old on October 26th.
Rayce wears a size 4 t-shirt andá size 4 pajamas. Pants are smaller as he is small for his age size 3. Rayce isn't a hat person, he's not into baseball caps.
á
áDue to Rayce being in isolation after his bone marrow surgeryá, gifts sent to him should remain in packages and unopened if possible .Due to the germ factor and low tolerance to any kinds of germs or viruses.

á
áTo send gifts only (not funds)please use the following address
á
Bill, Dara & Rayce Cannon
á5463 Fern Loop W.
áRichland, WA
á99353.

á
áThank you so very much,
áPam



á
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Mary Ann
Site administrator/webmaster
"Friends are the sunshine that brighten your day"


Last edited by Mary Ann on Wed Mar 31, 2010 8:08 pm; edited 1 time in total
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Mary Ann
Site Admin


Joined: 18 Aug 2005
Posts: 6405
Location: Norwood, MA

PostPosted: Sun May 31, 2009 10:37 pm    Post subject: Update on Rayce- Please pray Reply with quote

I just heard from Pam, they are going to have to perform open heart surgery on little Rayce. Please pray for him, he's been fighting so hard to live despite all he's been through.
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cherubin



Joined: 23 Sep 2007
Posts: 2599
Location: Germany

PostPosted: Mon Jun 01, 2009 8:22 am    Post subject: Reply with quote

That's very hard. My prayers and thoughts are with Rayce and his family. I hope all get well with him.
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romy



Joined: 16 Jan 2007
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Location: Germany

PostPosted: Mon Jun 01, 2009 6:07 pm    Post subject: Reply with quote

Of course I will pray for him. He'll be in my thoughts as well.
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CÚcile



Joined: 24 Nov 2008
Posts: 2077
Location: Bayonne, FRANCE

PostPosted: Tue Jun 02, 2009 4:41 am    Post subject: Reply with quote

I will pray for Rayce from the bottom of my heart.
God bless him and his family.
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HorseyJaneFan



Joined: 10 Nov 2007
Posts: 3466

PostPosted: Tue Jun 02, 2009 9:06 am    Post subject: Reply with quote

I'm keeping Rayce and his family in my prayers.
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Joanna

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Mary Ann
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Joined: 18 Aug 2005
Posts: 6405
Location: Norwood, MA

PostPosted: Sun Jun 28, 2009 10:39 pm    Post subject: Reply with quote

Rayce is currently in ICU and in very serious condition. We are praying for a miracle- everything seems to be shutting down in his body but we all know God does still perform miracles. Just maybe the love of enough people all over the world wil make it happen. This is a link to an online candle you can light for Rayce with your own special message.

http://www.gratefulness.org/candles/candles.cfm?l=eng&gi=rayc
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Mary Ann
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Michaela&Sully



Joined: 17 Apr 2006
Posts: 1218
Location: CANADA

PostPosted: Sun Jun 28, 2009 10:59 pm    Post subject: Reply with quote

Just did poor Rayce hope he gets better XO
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reneag78



Joined: 21 Nov 2007
Posts: 1106
Location: Boston, MA

PostPosted: Sun Jun 28, 2009 11:22 pm    Post subject: Reply with quote

Thank you for posting this Mary Ann. I've lit a candle along with a prayer for little Rayce and will go back again tomorrow. Sending thoughts of love and care to all the Cannon family.
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CÚcile



Joined: 24 Nov 2008
Posts: 2077
Location: Bayonne, FRANCE

PostPosted: Mon Jun 29, 2009 1:34 am    Post subject: Reply with quote

Done for today, will do as long as it will be necessary. We have to believe.
God bless
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cherubin



Joined: 23 Sep 2007
Posts: 2599
Location: Germany

PostPosted: Mon Jun 29, 2009 8:01 am    Post subject: Reply with quote

Thanks jfor posting this, Mary Ann. I've done for today and my husband too. I hope he gets better.
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~Marga

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HorseyJaneFan



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PostPosted: Mon Jun 29, 2009 9:20 am    Post subject: Reply with quote

Thanks for the link. I lit a candle. My heart breaks for Rayce and his family. I'm continuing to keep Rayce and his family in my prayers. I really believe in the power of prayer, and know that with God all things are possible.
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Joanna

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janine



Joined: 16 Jun 2009
Posts: 140
Location: Germany

PostPosted: Mon Jun 29, 2009 3:49 pm    Post subject: Reply with quote

Thank you Mary Ann which you have gepostet!
It is such a sad history, I am also a mother, and it goes very near me, I will pray for him and hope to him will be soon better!

Mary Ann, should I copy your contribution in my German Dr. Quinn Fanforum?
I think the fan also German it gives who would help certainly with pleasure!

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Mary Ann
Site Admin


Joined: 18 Aug 2005
Posts: 6405
Location: Norwood, MA

PostPosted: Mon Jun 29, 2009 4:24 pm    Post subject: !! Reply with quote

Of course please copy this anywhere!
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Mary Ann
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romy



Joined: 16 Jan 2007
Posts: 2865
Location: Germany

PostPosted: Thu Jul 02, 2009 2:06 pm    Post subject: Reply with quote

I lit a candle as well!!! I just hope everything will work out for Rayce!!! I'm praying for him.
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